Author Topic: Diagnosed with Ulcerative Colitis and now retiring from Active Duty Military  (Read 2873 times)

mtxe33

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Hello, I will share my story with you as this is all new to me and I want to be able to give and receive as much information as possible with my new diagnosis of Ulcerative Colitis.  I was diagnosed with Ulcerative Colitis June 20, 2008.  The symptoms first started in September 2006 when I all of a sudden would have a lot of air passing through my body and all of a sudden had the urge to go to the bathroom for diarrhea, but most of the time, nothing would come out except for blood, mucus and air.  The symptoms lasted about 1 month before I finally went to the military doctor.  The symptoms had subsided by the time I had a colonoscopy done.  The Gastroenterologist could not find anything wrong when he did the colonoscopy.  There were no signs of anything wrong with my colon.  I continued to have the symptoms approximately once every 3 or 4 months and the symptoms would last about two weeks. 

Finally, January 2008 the symptoms returned, but the severity worsened over the period of 5 months getting worse and worse.  So much to the point to where I couldn't leave my house because I would have to run to the bathroom at a moments notice and I could not hold it in.  This was very disrupting to me and my life.  I finally broke down and went back to the doctor and said the symptoms had returned and are a lot worse.  The doctor sent to me back to the Gastroenterologist once again.  This time I got a different Gastroenterologist.  She started me on Metronidazole, pending the colonoscopy I just scheduled for 3 weeks in the future.  The Metronidazole was supposed to fight any infection I may have in my colon.  It did not help.  It only made me feel cranky and irritable.  I then had the colonoscopy and she started me on Asacol (6 pills per day @ 400 mg for 30 days) and the Metronidazole (3 pills a day @ 250 mg for 7 days) again, pending the results of the colonoscopy and biopsy of the 4 areas of the colon.  Again, I was cranky with the Metronidazole, but the Asacol did help with the cramping and seemed to help with the severity of the UC.  My cramping wasn't the worse anyway, it was the repeated bowel movements without much warning if any. 

Three weeks later I had my follow up with the Gastroenterologist and she diagnosed me with UC.  She prescribed me the Asacol for 90 days (12 pills per day @ 400 mg).  She also prescribed me to take an enema for 30 days at night time and to follow up with her in 90 days.  I have not taken the enema yet.  I will because the symptoms have not gone away.  They have not gotten any worse.  What typically happens is I will wake up in the morning and immediately (not run) go to the bathroom and release air and blood (usually no mucus anymore).  Then within an hour, I have a bowel movement that has blood.  I eat after that and I have another bowel movement within 2 hours of eating and this is usually a much bigger movement.  I am usually good throughout the rest of the day depending on if I eat things that irritate me (pizza, peanuts, ice cream, milk).  At night I go to sleep and wake up because I have to go to the restroom and release air and blood (this happens 1 or 2 times per night).  This is pretty much the regular for me right now.  I want to find something that will totally rid me of the symptoms so I can feel confident to go run or go anywhere without worrying about the symptoms hitting me without warning.

Okay, now to the military part.  I am on Active Duty and have been for 20 years.  I was already pending a normal retirement before I knew I had this disease.  I can claim this disease through the VA, which I will because I do not want to hang around the military any longer for them to tell me that they can't keep me because of the disease.  I am not sure how much disability I will get for this disease, but I will keep posting the progress that I make throughout this entire ordeal.  I hope by me posting this information, it will help people like the postings before mine have helped me.  I may end up trying Aloe.  If anyone has any input, please feel free to add your comments.  Thanks

Lisky

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Hello

I completely understand where you are coming from.  This is my life too.  I am not in the military but rather a sales manager for a new home building firm and this affects me on a daily basis also.  Exactly how you explained it, is what happens to me also.  I have started taking the Aloe Elite and have for about 6 weeks - at first it was wonderful however the syptoms are starting to creep back - not as severe though.  My biggest problem is bowel control - I can't hold not even for 5 minutes.  I have had embarrassing situations - and wish this would just stop.

I have even contemplated having my bowel removed and living with a bag.  At least the urges and accidents would go away.  But you see the problem is - I am only 31.

I wish I had the answers for you and I wish you had the answers for me.

Stay strong.......
L

mtxe33

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I asked my GI if this would ever result in me having to have my colon removed and living with with a bag the rest of my life.  She replied with a giggle and said that medical science has advanced.  She said she does not anticipate me having to have that done, however, she said in the event that it does happen, a artificial (something) can be inserted once your body heals from the removal of the colon, which will allow you to live without the bag.

I personally would tell you not to get discouraged.  You are far too young to be contemplating the removal of your colon.  I don't know your insurance situation though.  How long have you had the symptoms?  How many different methods of medicine have you tried?  In either case, do not give up on the body you have.  You can continue to fight this and get better.  I will do the same.  We can use one another for strength and others who are like us.  Stay strong my brother and keep the faith.

I know the frustrating part with not being able to hold the bowel movement.  If I am sitting down, I have a better chance of holding it, but if I am standing up, there is little chance in hell that I can hold it.  It is frustrating and I always find myself staying close to a restroom when I am away and always worrying about if the sensation will hit me at a moments notice.  Hang in there and let's stay in touch.

Lisky

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Hello again -

I have been diagnosed since I was 25 and I can remember having symptoms every now and then around 22.  So quite a long time.  My father also has it mildly and my brother also has UC.  My uncle (dad's brother) recently passed away last year with bowel cancer - he also had UC.  So as you can understand I am quite worried all the time about this illness.  The other problem is that I am allergic to sulphur based medications and have been hospitalised for this.  So my choices with meds is very limited.  Prednisone (Steroid) does help but you can't take this for long times as it causes bone weakening.  I have found the Aloe Elite and Immodium taken together to be quite effective - but not perfect.

I also find I get really panicky when away on holidays or in places I don't know, if I can't see a toilet - this makes it really hard on people I holiday with as I don't like to go on tours etc because I don't want to get caught out.  Next year I have a big 6 week overseas holiday planned with my partner and 2 friends.  I am hoping that my body is behaving itself by then.

Not to embarrass you - but I am actually female but I am happy to stay strong as your sister!!!

Just something else on the control issue - my doctor told be that my control would return - however its been 5 years and I am still waiting.  I don't know if doctors or specialists really know enough about this disease.

Anyway it was great talking to you again.
L

mtxe33

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Sorry L, I don't know why I assumed u were a male.  After hearing your family history, I can definitely understand why you were saying the things you were and also your allergies to medications.  I honestly hate taking pills (Asacol).  It makes my stomach feel like someone is always pressing against my stomach.  12 pills of Asacol a day to me is just too much.  I don't like it.  Well, actually, I haven't even taken 12 yet.  I moved up to 8 per day for this week and next week, then I will move to 12 per day, but this is supposed to be for 90 days, then I will go see the GI again after 90 days, but I just don't want to go through the uncomfortable feeling I get from the Asacol, however, it is better than nothing because I went from being on the toilet 10 - 15 times a day, down to 2 or 3, so I will continue to do it. 

How much was the Aloe Elite?  How soon did you notice an improvement?  I would rather take something natural than pills.  I need and want my liver to last for all of my life.  I don't even know about the immodium.  Is this a pill?  Over the counter or prescription?  I will be contacting my Uncle who has Chron's disease and I am sure he will have more insight.  I am so shocked by this diagnosis, thinking I had Irritable Bowel Syndrome and find out I have something much worse. 

I don't want to complain too much because I am not having severe symptoms like many people are, but I also don't want to get to that point.  I am concerned as well about my future because my grandmother died from colon cancer.  My Uncle as I mentioned has Chron's disease and has had it for at least 25 years.  This disease has almost taken his life on at least 2 occasions that I can remember.  All of these things concern me about my future.  Most of my future is uncertain.  I wonder if this will prevent me from being hired into Law Enforcement.  I wonder if I can go to the 6 month Academy without having uncontrollable bowels.  I hate not knowing what my future holds.  I am hanging in here though and taking this day by day and hoping for improvement to where I will no longer have any symptoms.  Thanks for the feedback L and I will continue to remain in touch.

Lisky

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Hi again! 

No Problem about the male/female misunderstanding! :D :D

The Aloe Elite seemed to work for me within 5 days of taking it.  The immodium is an over the counter tablet which people taking when they have diarrhea from a virus of something.  But taking them together seems to be the most effective.  Then you can eventually stop taking the immodium and remain on the aloe elite - check out the website on it and do you research as there are some other types on the market also.  Its expensive $159 per bottle which lasts about 1 month ( I buy 3 at a time - cheaper)- but I got to the point that I don't care how much it costs.

How old are you?  Males seem to get it a lot later in life.  I can't believe I got it so young and my doctor (who has a few regular patients with it) couldn't believe it when I was diagnosed.  I have an 11 year old son- my biggest fear is that he will eventually have it to.  It seems hereditary - and the boys in our family seem destined to get it.  Unfortunately I was also unlucky - maybe because I am first born.  My younger sister - who is between myself and my brother doesn't have it.  She is so lucky!!!

It is so good to have someone to talk to who knows what I am on about.  My partner tries to understand - but you just can't until you have lived with it.

Where are you from??  I live in Australia.

Talk again soon
 - my name is Melissa

mtxe33

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Hi Melissa,

I am going to ask my GI about the Aloe Elite and just see if the military will purchase it, but I'm sure they probably will not.  It's worth a try.  In either case, I will get it one way or the other.  I am 40 years old.  I started having these symtpoms when I was 38 1/2 years old (Sep-Oct 2006).  I was not diagnosed until June 2008.   Anyone who doesn't have UC is lucky and blessed.  I wish I did not have it, but I also thank God that I don't have anything worse because there are quite a few things that are worse.  Even UC can get worse for me and I know that, so basically I am thankful for the level that it is because it could be worse.  I don't have it as bad as your symptoms seem to be and I feel for you because I have had moments when it was just horrible, painful, relentless, non-stop.  Those times were extremely difficult and discouraging.  I wondered if I was going to have to be hospitalized.  All of these symptoms hit me before I was diagnosed.  I was wondering what the heck is going on with me. 

I am in California.  My girlfriend seems to think that Aloe Juice can help with the symptoms.  Do you know if this is true?  She tells me, why don't you drink Aloe Juice; it will help you.  I respond by telling her, I have not read any article where Aloe Juice cured anyone's symptoms.  She doesn't understand how frustrating this disease is, but is trying to get me to test different things.  I don't want to test different things.  I want to use the things that will make the symptoms go away instead of trying all sorts of medicines.

My name is Danny.  Talk to you soon!

Lisky

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Hello again.

I got your email off your profile and I have emailed you an ebook I bought off the internet and was thinking of trying.  Have a read and see what you think.......couldn't hurt.

I have tried Aloe Juice - didn't work for me but it is good for general health of the bowel.  There is no cure as such - but I am sure many things help to ease the disease into remission.

Don't worry the longer the years go on - your girlfriend will learn to understand.  I get very frustrated with my partner at times too - because sometimes they just don't think about how anxious I get when I have to go anywhere.  I like to really plan what I am doing and where I am going - as to assist with my quick exits to the bathroom.  I can't just drop everything and go.

Anyway have a read and let me know what you think - either on email or here - I check each regularly!

Melissa

inthecorps

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I was diagnosed with UC in 2007 while out on recruiting duty. now im on my 2nd limited duty and i have had a colonoscopy done in january of this year but there is no evidence of it. I am still having the symptoms and move my bowls anyehere from 6 to 8 times a day. the medds they have me on are obviously not working. I have also had a small bowl through done just recently in may and no evidence. this is so frustrating. the civilian GI doesnt know what it could be that is causing my symptoms since he says the blood work and the colonoscopy and small bowl through dont show any evidence at this time. i just want to get out and live a normal life cause i cant even do my job in the corps.  i have been in for 9 years and my contract is until dec 2013 and i dont think i want to be in till then living like this. if any one can help me it would be greatly appreciated.

Admin

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As the admin of this site I choose to market AloeElite so my opinion may not matter to you but for what it's worth the people I've personally referred have had great results.  They rave about the customer service and say that when they are taking it and not eating too crappy it works great.  For the regimen you're used to in the military I wouldn't imagine this to be a problem. 

Take your pills and don't eat too much crap are the orders.

This site doesn't get a lot of traffic so the sales that are here barely pays for itself but I leave it running since there seems to be a community that's helping each other here. 

As a marketer I get all of their promotion emails and I just saw one pass through here saying $99/bottle for military.  I'm sure if you call in they'll know what it's about.  I know you guys don't get paid what you're worth so I hope that helps a little. 

Get well guys and be safe.